Comments on: { it’s hard to be five … and thirty six } http://www.ohmystars.me/2011/04/its-hard-to-be-five-and-thirty-six/ Life. Craziness. Homeschooling. Illness. Love. Mon, 07 May 2012 22:44:11 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Sarah http://www.ohmystars.me/2011/04/its-hard-to-be-five-and-thirty-six/comment-page-1/#comment-2191 Sarah Sun, 25 Mar 2012 04:49:28 +0000 http://www.ohmystars.me/?p=456#comment-2191 Thank you for sharing your story. I too have a sensory child and everyday is a struggle to get dressed, do the regular things before school, get out of the house, social interactions, etc.. It wears a person down. I too struggle with feelings of inadequacy as a Mom. When I get worn down, grumpy, and less patient, does she still know how much I love her? I would do anything to make her world an easier place. It seems there are so many challenges for her and for us as a family with her. She also has an impenetrable joy deep within her that we are so thankful for. I really appreciated reading your story, it gave me comfort tonight, after another long tedious journey of getting her to sleep..when I often end in tears. Thank you. Thank you for sharing your story. I too have a sensory child and everyday is a struggle to get dressed, do the regular things before school, get out of the house, social interactions, etc.. It wears a person down. I too struggle with feelings of inadequacy as a Mom. When I get worn down, grumpy, and less patient, does she still know how much I love her? I would do anything to make her world an easier place. It seems there are so many challenges for her and for us as a family with her. She also has an impenetrable joy deep within her that we are so thankful for. I really appreciated reading your story, it gave me comfort tonight, after another long tedious journey of getting her to sleep..when I often end in tears. Thank you.

]]> By: Miranda http://www.ohmystars.me/2011/04/its-hard-to-be-five-and-thirty-six/comment-page-1/#comment-1870 Miranda Sun, 22 Jan 2012 20:26:27 +0000 http://www.ohmystars.me/?p=456#comment-1870 Thank you for taking the time to share your love for life, family and all things good :) You are an inspiration for mom's like me who simply find success in just getting out the door on time with clean matching socks (and somedays not even matching ;). Warmly, Miranda Thank you for taking the time to share your love for life, family and all things good :) You are an inspiration for mom’s like me who simply find success in just getting out the door on time with clean matching socks (and somedays not even matching ;) .
Warmly,
Miranda

]]> By: Michelle http://www.ohmystars.me/2011/04/its-hard-to-be-five-and-thirty-six/comment-page-1/#comment-1498 Michelle Fri, 23 Dec 2011 14:12:32 +0000 http://www.ohmystars.me/?p=456#comment-1498 I am sat here almost heartbroken right now. After reading about the struggles your daughter is going through, I was basically reading about my own daughter! She is 12, smart, beautiful and everything you wrote about your girls struggles, it is like reading my life for the past 12 years. The clothes, the noises, the crying the struggles.....Oh I didn't even know there was a name for it. I spent countless hours upon hours crying out of frustration wondering why my child was like this. Oh the money I have spent on beautiful clothes, only to see my child hide them in the closet under things so she didn't have to wear them, as they "hurt" or were "uncomfortable" and the tags!! Now, after reading this, I am riddled with guilt, relief, sadness and overall shock! Oh tantrums she would have when she was small because of the sounds, sensory overload in crowds. Thank you Annie. You have no idea the impact you have just made on my life alone! I have followed your work, being a photographer myself, you always inspire! Now I have something else to ponder. I too, have a illness, that I am privately struggling with, that makes each day a challenge. Thanks Annie. Once again you have opened my eyes to something! Michelle :) I am sat here almost heartbroken right now. After reading about the struggles your daughter is going through, I was basically reading about my own daughter! She is 12, smart, beautiful and everything you wrote about your girls struggles, it is like reading my life for the past 12 years. The clothes, the noises, the crying the struggles…..Oh I didn’t even know there was a name for it. I spent countless hours upon hours crying out of frustration wondering why my child was like this. Oh the money I have spent on beautiful clothes, only to see my child hide them in the closet under things so she didn’t have to wear them, as they “hurt” or were “uncomfortable” and the tags!! Now, after reading this, I am riddled with guilt, relief, sadness and overall shock! Oh tantrums she would have when she was small because of the sounds, sensory overload in crowds. Thank you Annie. You have no idea the impact you have just made on my life alone! I have followed your work, being a photographer myself, you always inspire! Now I have something else to ponder. I too, have a illness, that I am privately struggling with, that makes each day a challenge. Thanks Annie. Once again you have opened my eyes to something!
Michelle :)

]]> By: Cynthia http://www.ohmystars.me/2011/04/its-hard-to-be-five-and-thirty-six/comment-page-1/#comment-1057 Cynthia Sun, 27 Nov 2011 16:44:45 +0000 http://www.ohmystars.me/?p=456#comment-1057 I'm so sorry for her, and you because it breaks your heart. I hate these kind of unasked-for advice things, but my boy with sensory issues was helped enormously with brush therapy. I hope she'll feel better soon. I’m so sorry for her, and you because it breaks your heart.

I hate these kind of unasked-for advice things, but my boy with sensory issues was helped enormously with brush therapy.

I hope she’ll feel better soon.

]]> By: Kristin Sobieski http://www.ohmystars.me/2011/04/its-hard-to-be-five-and-thirty-six/comment-page-1/#comment-579 Kristin Sobieski Wed, 29 Jun 2011 12:10:13 +0000 http://www.ohmystars.me/?p=456#comment-579 I am so sorry to hear what your family is going through. I just wanted to tell you how much I admire you!!!! You are the Mom that I am going to strive to be. I have, Lilly who is 5 and Maya, who is getting ready to turn 3. We have moments that just make me want to scream and sometimes I do get frustrated and yell back. When I read that you never yell back, it made me want to try my hardest not to again. That you for pouring your heart out to all of us. You are truly an inspiration, not only in your beautiful photography but as a Mom and a business owner. Thank you for all you do!!!! Much love, Kristin Sobieski I am so sorry to hear what your family is going through. I just wanted to tell you how much I admire you!!!! You are the Mom that I am going to strive to be. I have, Lilly who is 5 and Maya, who is getting ready to turn 3. We have moments that just make me want to scream and sometimes I do get frustrated and yell back. When I read that you never yell back, it made me want to try my hardest not to again. That you for pouring your heart out to all of us. You are truly an inspiration, not only in your beautiful photography but as a Mom and a business owner. Thank you for all you do!!!!
Much love,
Kristin Sobieski

]]> By: Julia http://www.ohmystars.me/2011/04/its-hard-to-be-five-and-thirty-six/comment-page-1/#comment-457 Julia Tue, 26 Apr 2011 20:26:41 +0000 http://www.ohmystars.me/?p=456#comment-457 Annie, I just want to give you a big hug.. My daughter is not easy either ( although she has good days sometimes) I used to cry too.. I admire you for what you deal with.. I wan to encourge you just do whats best from your heart.. It is heart breaking but when she gets older and if she sees that you stayed true to her and never changed she will grow to understand things better then she does now.. You are great mommy and they are great girls. We are all different but love is all that meters.. hugs and do get good sleep always pls. I love your actions by the way and just admire you even more for what you do and manage also your life with the kids and POTS. God bless! Annie, I just want to give you a big hug.. My daughter is not easy either ( although she has good days sometimes) I used to cry too.. I admire you for what you deal with.. I wan to encourge you just do whats best from your heart.. It is heart breaking but when she gets older and if she sees that you stayed true to her and never changed she will grow to understand things better then she does now.. You are great mommy and they are great girls. We are all different but love is all that meters.. hugs and do get good sleep always pls. I love your actions by the way and just admire you even more for what you do and manage also your life with the kids and POTS. God bless!

]]> By: Breanna Peterson http://www.ohmystars.me/2011/04/its-hard-to-be-five-and-thirty-six/comment-page-1/#comment-455 Breanna Peterson Tue, 26 Apr 2011 04:49:13 +0000 http://www.ohmystars.me/?p=456#comment-455 thanks so much for sharing your story, Annie, it seems parents have to go through so much more these days and I don't understand why (well I have a lot of theories, but then this would get really long!!). While we don't experience the same as Sensory Integration Disorder, my 4-1/2 yr old son has severe eczema and multiple food allergies and intolerances (literally able to eat five foods at one point). It's so hard when we do so much for them, but still can't make things "right." I also wanted to suggest seeing a pediatric Occupational Therapist, if you haven't already. That is what my mom does (and is really good). I don't know any O.T.'s in your area (we live in Alaska), but of course remember you have to find the right individual to help you, not necessarily anyone in that profession will be helpful. We've definitely learned that! Good luck on your journey- you're an amazing mom & photographer! Thanks for sharing, Breanna...my name links to my photo blog, but my personal blog is Allergic Adventures, http://www.allergicadventures.com, where you can read about our journey thanks so much for sharing your story, Annie, it seems parents have to go through so much more these days and I don’t understand why (well I have a lot of theories, but then this would get really long!!). While we don’t experience the same as Sensory Integration Disorder, my 4-1/2 yr old son has severe eczema and multiple food allergies and intolerances (literally able to eat five foods at one point). It’s so hard when we do so much for them, but still can’t make things “right.”

I also wanted to suggest seeing a pediatric Occupational Therapist, if you haven’t already. That is what my mom does (and is really good). I don’t know any O.T.’s in your area (we live in Alaska), but of course remember you have to find the right individual to help you, not necessarily anyone in that profession will be helpful. We’ve definitely learned that! Good luck on your journey- you’re an amazing mom & photographer! Thanks for sharing, Breanna…my name links to my photo blog, but my personal blog is Allergic Adventures, http://www.allergicadventures.com, where you can read about our journey

]]> By: Amy http://www.ohmystars.me/2011/04/its-hard-to-be-five-and-thirty-six/comment-page-1/#comment-454 Amy Mon, 25 Apr 2011 18:45:32 +0000 http://www.ohmystars.me/?p=456#comment-454 I also understand what you are going through. I have a 3 1/2 yr old daughter who has SPD (sensory processing disorder). She just finished a 10-week therapy program at a clinic called The STAR Center, which is located in Denver. They are the only clinic of their type in the world, and an amazing source of information. You should look at their website for information that might help your family. They have links to great books, articles, online forums, stores that sell clothing and other items which can be helpful. They also work directly with families from all over the world. I cannot tell you how much it helps to work with someone who knows how to help your child and you! We have learned so much regarding how to help our daughter deal with the sensory challenges that she encounters. It has helped minimize the number of tantrums and feelings of total frustration for us. http://www.starcenter.us Good luck - you sound like you are doing a great job! I also understand what you are going through. I have a 3 1/2 yr old daughter who has SPD (sensory processing disorder). She just finished a 10-week therapy program at a clinic called The STAR Center, which is located in Denver. They are the only clinic of their type in the world, and an amazing source of information.
You should look at their website for information that might help your family. They have links to great books, articles, online forums, stores that sell clothing and other items which can be helpful. They also work directly with families from all over the world.

I cannot tell you how much it helps to work with someone who knows how to help your child and you! We have learned so much regarding how to help our daughter deal with the sensory challenges that she encounters. It has helped minimize the number of tantrums and feelings of total frustration for us.
http://www.starcenter.us

Good luck – you sound like you are doing a great job!

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